book review: “the diving bell and the butterfly” by jean-dominique bauby
Posted in Books on February 1st, 2008Denver, CO
From Random House:
In December 1995, Jean-Dominique Bauby, the 43-year-old editor of French Elle, suffered a massive stroke that left him permanently paralyzed, a victim of “locked in syndrome.” Once known for his gregariousness and wit, Bauby now finds himself imprisoned in an inert body, able to communicate only by blinking his left eye. The miracle is that in doing so he was able to compose this stunningly eloquent memoir.
In a voice that is by turns wistful and mischievous, angry and sardonic, Bauby gives us a celebration of the liberating power of consciousness: what it is like to spend a day with his children, to imagine lying in bed beside his wife, to conjure up the flavor of delectable meals even as he is fed through at tube. Most of all, this triumphant book lets us witness an indomitable spirit and share in the pure joy of its own survival.
I first heard about this book when I was watching previews with my parents in Atlanta and my Mom mentioned having read it (and said how good it was). So when I was in the bookstore and saw the book, I decided to read it as I knew I couldn’t see the movie until I had read the book.
The book is a fascinating real life story of a man in his prime that suffered a stroke and then was bound within his body with “locked in” syndrome. I have never heard of this and cannot imagine the initial torture such a fate must cause. But Bauby is inspirational in his embracing his fate and finding a way to share with the world the capability of a mind stuck in a non-functioning body.
The story is brief yet poignant and delves through the initial phases of dealing with the results of the author’s stroke (looking at his ten and eight year old children and wanting to hug them but not being able to communicate in any way save a wink of one eye). It is brutal and honest regarding how different people in his life deal with the situation (from the letters that arrive that give him daily inspiration to the visitors that walk to the door and turn around because they can’t handle their pain).
Truly an amazing and inspirational story that provides an insight we might not otherwise be exposed to. This short book is a powerful read that will grab you and keep you reading until the last page. I can’t wait to see this on the big screen. Here’s to people like Bauby and their helping to educate the world.